Disability and Active Citenzship DACTIVE

Outcomes/Research Instruments

Research Instruments:

QUALITY OF LIFE (WHOQOL) –BREF

This instrument assesses the perception that individuals have of their position within the context in which they live and of values systems, dealt with their objectives, expectations, standard and interests.

This instrument provides a multidimensional profile about the environments and the aspects of the quality of life.

This instrument can be applied in many contexts: medical, research, control and political.

Moreover this instrument assesses the efficacy of treatments, as well as the variations of quality of life among different cultures, in order to compare subgroups in the same culture, and to measure changes on time due to the adjustments of circumstances of life. It is made up of 24 items subdivided in 4 domains:

  • Physical Environments
  • Psychological Environments
  • Social Relationships
  • Environment

It derives from a previous version made up of 100 items that permits a detailed valuation of the individual’s characteristics relating to the quality of life. This instrument should be self-administered if the respondent has sufficient abilities of comprehension; otherwise, it should be administered by an interviewer or the interviewer should help the subject to compile the questionnaire. The instrument requires 15 minutes for administration.

PDF QUALITY OF LIFE (WHOQOL)–BREF (PDF)


WHODAS II

The WHODAS II has been developed to assess the activity limitations and participation restrictions experienced by an individual irrespective of medical diagnosis.

Respondents are asked to state the level of difficulty experienced taking into consideration how they usually do the activity, including the use of any assistive devices and/or the help of a person. The domains included in the instrument are:

  • Understanding and communicating
  • Getting around
  • Self care
  • Getting along with people
  • Life activities
  • Participation in society

This version (36 item) provides the most complete assessment of functioning. Scores for six domains of functioning, as well as an overall functioning score, can be calculated.

For each item that is positively endorsed, a follow-up question asks about the number of days (in the past 30 days) the respondent has experienced this difficulty.

The day codes version assesses number of days using a five-point ordinal scale, while the days version simply asks the respondent to report the actual number of days the difficulty was present. It requires 20 minutes to administering.

PDF WHODAS II (PDF)

PDF Report Grid Spread-sheet (XLS)


Aims of ICF

ICF is a multipurpose classification designed to serve various disciplines and different sectors. Its specific aims can be summarized as follows:

  • to provide a scientific basis for understanding and studying health and health-related states, outcomes and determinants;
  • to establish a common language for describing health and health-related states in order to improve communication between different users, such as health care workers, researchers, policy-makers and the public, including people with disabilities;
  • to permit comparison of data across countries, health care disciplines, services and time;
  • to provide a systematic coding scheme for health information systems.

These aims are interrelated, since the need for and uses of ICF require the construction of a meaningful and practical system that can be used by various consumers for health policy, quality assurance and outcome evaluation in different cultures.

PDF Applications of ICF (PDF)

PDF ICF checklist Spread-sheet (XLS)

PDF ICF-manual (PDF)

PDF ICF checklist (PDF)


Ca.R.R.I. (Caregiver Role Relation Interview)

The interview has been developed by psychologists that work in the CSE Totem, managed by Co&So and City of Florence.

The aim is to deeply understand the relationship between the caregiver (CG) and the carereceiver (CR), on an epistemological constructivist reference.

The caregiver, through qualitative techniques as semantic differential, constructivist techniques as dependence grid and questions with open answer, is stimulated to reflect on the caregivers’s emotions toward the carereceiver (and vice versa), possible explanations, caregiver’s needs and carereceiver’s needs, future relationship with the carereceiver from an idealistic and realistic viewpoint.

This aspects are subdivide in 5 sections

  1. CR‘ s needs and support: the carereceiver’s typology and needs’ amount, people which give support and intensity’s support perceived by the CG about the carereceiver’s needs’ satisfaction.
  2. CR’ s emotions: the caregiver’s perception concerning the way the carereceiver feels towards him, that means the capacity to understand the effects of his behaviour and on his relationship with the carereceiver.
  3. CG’ s emotions: the way the caregiver is feeling about the carereceiver.
  4. Change: the type of change (positive or negative) the caregiver is feeling from the carereceiver, on a personal, familiar, relational, social and professional level.
  5. Relationship in the future: the way the caregiver imagines the relationship with carereceiver in future.

The caregiver has the possibility to express, comment and specify different elements missed on the interview through opened questions.

The information obtained, let the caregiver increase the comprehension and consciousness of various aspects of the relationship with the carereceiver and obtain directions about possible and expected interventions that should be improved the relationship between the caregiver and carereceiver and the satisfaction of their needs; in order to have positive consequences on their quality of life.

The information obtained by this interview is confidential and should be used for research.

The interview is structured, and should be self-administered, administered by a psychologist or guided for psychologists. Is expected 30-40 minutes for its application.

A grid is predisposed in order to insert and to give a synthesis of the answers collected.

PDF Ca.R.R.I (PDF)


INTERNET WEB SITES REFERENCES of THE D-ACTIVE PROTOCOL’S INSTRUMENTS

International Classification of Functioning, Disability and Health (ICF)
http://www.who.int/classifications/icf/en/

The World Health Organization Disability Assessment Schedule II (36-Item Proxy Informant Version)
http://www.who.int/classifications/icf/whodasii/en/index.html

The World Health Organization Quality of Life (WHOWOLF) - Bref
http://www.who.int/substance_abuse/research_tools/whoqolbref/en/

Caregiver Burden Inventory (CBI) (Novak M. & Guest, C., 1989)
http://www.fullcirclecare.org/caregiverissues/health/burden.html

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logo Lifelong Learning Programme (LLP) The D-Active Project (Disability and Active Citizenship - LLP / Grundtvig - Multilateral Projects - Ref. 510773-LLP-1-2010-1-ITGRUNDTVIG-GMP) has been funded with support from the European Commission, represented by the Education and Culture DG. This publication reflects the views only of the author/project group, and neither the Commission nor the DG can be held responsible for any use which may be made of the information contained therein.

D-Active - Disability and Active Citizenship - LLP / Grundtvig - Multilateral Projects - Ref. 510773-LLP-1-2010-1-ITGRUNDTVIG-GMP
Coordinator: Co&So Firenze – Via L. Pellas, 20 A/B – 50141 Firenze ITALY – t +39 055 45 04 74 – f +39 055 45 08 00 – www.coeso.org